Hello to my blog followers. I apologize that my last post was brief and pretty harsh, and that it has been a while since I posted. As you may have guessed, it has been a tough time.
I had scans last week and saw Motzer today. The news is again not
good. While the tumors in some areas (vena cava, retroperitoneal) have
not expanded, those in the pelvic area have grown. All along we have known that it is a aggressive tumor type. fyi: these tumors
are all in lymph nodes, the organs themselves are not involved, except
in that the tumors can put quite severe pressure on the organs.
After my last blog, in which I said that Motzer had suggested that chemo
options were pretty much exhausted, he has now suggested a new one.
When pressed, he admits that it's efficacy is a long shot. But he explained that
many patients benefit from feeling that they are trying something. My thinking
for now is to postpone this. I am still working with the pain clinic to
try to find a good balance of pain drugs, and am reluctant to introduce a
new set of possible side effects. My current plan is to wait until after
Barnard's graduation and perhaps try something then. Or maybe not.
I am mostly home, and would welcome visits, if you are nearby. But please call first. I sleep a lot.